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Not Fade Away: A Memoir of Senses Lost and…
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Not Fade Away: A Memoir of Senses Lost and Found (edició 2014)

de Rebecca Alexander, Sascha Alper

MembresRessenyesPopularitatValoració mitjanaMencions
9131295,242 (3.7)5
"The inspiring memoir of a young woman who is slowly losing her sight and hearing yet continues to live each day with grace and purpose. Thirty-four-year-old Rebecca Alexander is a psychotherapist, a spin instructor, a volunteer, and an athlete. She is also almost completely blind, with significantly deteriorated hearing. Not Fade Away is a deeply moving exploration of the obstacles we all face-physical, psychological, and philosophical. Like The Diving Bell and the Butterfly, Rebecca's story is an exquisite reminder to live each day to its fullest. When Rebecca was twelve, her parents were told that she would be completely blind before she turned thirty. At eighteen, she fell through a window, shattering her body. In college, she found out that due to a rare genetic disorder-Usher Syndrome Type III-she was losing her hearing as well. Since then, she has earned two Master's degrees from Columbia University, ridden a six-hundred-mile bike race, hiked the Inca Trail, and established a thriving career-all while maintaining a vibrant social life. In Not Fade Away, Rebecca charts her journey from a teenager who tried to hide her disabilities, to a woman who is able to face the world exactly as she is. She meditates on what she's lost-the sound of laughter and skies full of stars, which she can now only imagine (though, she quips, "It's not like anyone can see stars in New York anyway")-and what she's found in return: an exquisite sense of intimacy with family and friends who've stuck by her, and a profound appreciation for everything she still has. Even though Rebecca inhabits a gradually darkening world, she refuses to let that stop her from living life with joy and enthusiasm."--… (més)
Membre:ellasmeme
Títol:Not Fade Away: A Memoir of Senses Lost and Found
Autors:Rebecca Alexander
Altres autors:Sascha Alper
Informació:Gotham (2014), Hardcover, 320 pages
Col·leccions:Read in 2015
Valoració:*****
Etiquetes:Cap

Informació de l'obra

Not Fade Away: A Memoir of Senses Lost and Found de Rebecca Alexander

  1. 00
    Girl in the Dark: A Memoir de Anna Lyndsey (akblanchard)
    akblanchard: Young women cope with rare, life changing disorders.
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Ressenya escrita per a Crítics Matiners de LibraryThing .
Not Fade Away is about Rebecca Alexander and her life with a genetic illness called Usher Syndrome type III.
Usher Syndrome type III will rob Rebecca completely of her sight and hearing at some point in the prime of her life. Type III being a gradual loss of sight and hearing since her childhood. Rebecca wrote that when she was young she was in denial about her condition and the outcome it will have for her in the future. This book is audaciously positive. I found it very hard to believe that no matter what happens a person finds a positive outlook in it. In a book, as in life, there are both pros and cons. The only thing that was written about as a con was the way her appearance would look like with items such as hearing aids, Cochlear implant and her cane for the blind. She worried if she would still be attractive with these things. Really? Many questions kept coming to me while reading this book, the parts readers were never made privy to, like who walked the dog? The book never really did focus on the smaller parts of her life. The everyday things that we all do that had to become more challenging for her. I do not want to read a sob story but I did want to know the good with the bad. Rebecca did make it very clear that she did not have to worry much because Alan, Caroline, Polly or her mom would figure it out or do it for her. When you start reading this book you think to yourself I could not imagine this happening to me and then half way through the book the reader realizes Rebecca can not either. I think this would be a great read for people who like puff pieces. Oh by the way, how she has written about Alan. It is like they are in an open relationship. I doubt she will ever move past him. With Goodreads two stars means the book was o.k.. I gave Not Fade Away 2 stars because I thought it was an o.k. book.
I received this book from LibraryThing for an honest review. ( )
  THCForPain | May 27, 2016 |
So upbeat! Really a wonderful memoir and full of so much for such a young person who seems to have already lived several lives. I love her mantra---"breathe in peace, breathe out fear" -- terrific for anyone to absorb and use. It's hard to imagine so much energy and life in just one person so it's terrific that she put down the hard-won but extremely detailed descriptions of her struggles to try and live as normal a life as possible. I love her attitude about accepting help as she is giving help. ( )
  nyiper | May 10, 2015 |
Ressenya escrita per a Crítics Matiners de LibraryThing .
It took me awhile to get into this book, but I did after about the first third of it. Fascinating and sad, this young lady is a very good example to everyone when it comes to endurance and resourcefulness. I admire her tenacity and how she continually looks for ways to make her life happy and productive. Good book for everyone, except perhaps very young persons. ( )
  Rob.Larson | Apr 16, 2015 |
Ressenya escrita per a Crítics Matiners de LibraryThing .
A smart, funny, sexy, and tender treatise on compassion and acceptance..

Everyone should read this book. ( )
  synecdouche | Mar 30, 2015 |
What ages would I recommend it too? Eighteen and up. (Too many sexual references in the novel for a younger audience.)

Length? A couple of days.

Characters? Memorable, several characters.

Setting? Real world. California and New York.

Written approximately? 2014.

Does the story leave questions in the readers mind? Ready to read more. I want to learn more about the science behind the disorder.

Any issues the author (or a more recent publisher) should cover? I'd really like some information or links that would help readers find a helpful specialist. So many are not.

Short storyline: A look at the life of a woman with Usher 3. She covers what she feels she did right, and even her glaring mistakes.

Notes for the reader: She clearly conveys the differences among people with eye disorders. She was able to learn sign language, and prefers it to speech or braille. My attempt at sign language a few decades ago was a failure. My vision was too poor to follow the motion. I am now learning braille. Following different paths we'll still reach the same place. ( )
  AprilBrown | Feb 25, 2015 |
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Nom de l'autorCàrrecTipus d'autorObra?Estat
Rebecca Alexanderautor primaritotes les edicionscalculat
Alper, Saschaautor secundaritotes les edicionsconfirmat
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Wikipedia en anglès

Cap

"The inspiring memoir of a young woman who is slowly losing her sight and hearing yet continues to live each day with grace and purpose. Thirty-four-year-old Rebecca Alexander is a psychotherapist, a spin instructor, a volunteer, and an athlete. She is also almost completely blind, with significantly deteriorated hearing. Not Fade Away is a deeply moving exploration of the obstacles we all face-physical, psychological, and philosophical. Like The Diving Bell and the Butterfly, Rebecca's story is an exquisite reminder to live each day to its fullest. When Rebecca was twelve, her parents were told that she would be completely blind before she turned thirty. At eighteen, she fell through a window, shattering her body. In college, she found out that due to a rare genetic disorder-Usher Syndrome Type III-she was losing her hearing as well. Since then, she has earned two Master's degrees from Columbia University, ridden a six-hundred-mile bike race, hiked the Inca Trail, and established a thriving career-all while maintaining a vibrant social life. In Not Fade Away, Rebecca charts her journey from a teenager who tried to hide her disabilities, to a woman who is able to face the world exactly as she is. She meditates on what she's lost-the sound of laughter and skies full of stars, which she can now only imagine (though, she quips, "It's not like anyone can see stars in New York anyway")-and what she's found in return: an exquisite sense of intimacy with family and friends who've stuck by her, and a profound appreciation for everything she still has. Even though Rebecca inhabits a gradually darkening world, she refuses to let that stop her from living life with joy and enthusiasm."--

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