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Alex: The Life of a Child de Frank Deford
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Alex: The Life of a Child (1983 original; edició 1997)

de Frank Deford

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300465,914 (4.14)7
Alexandra Deford, a precious and precocious girl, was just eight years old when she died in 1980 following a battle against the debilitating effects of cystic fibrosis, the number-one genetic killer of children. Her poignant and uplifting story touched the hearts of millions when it was first published and then made into a memorable television movie. A new introduction contains information on the latest cystic fibrosis research, and a touching postcript reveals how the Deford family came to terms with the loss of Alex. Whenever he speaks, sportswriter Frank Deford knows people will bring articles for him to sign. But what makes him happiest is when someone attends a sports-oriented lecture and brings a copy of Alex: The Life of a Child for him to sign. "Invariably, and happily, there's usually someone at each appearance who either brings that book or wants to talk about their connection to cystic fibrosis." Deford says. "It's tremendously gratifying to me. Rarely does a week go by that I don't get a letter about that book. People leave things at her grave. They really do. I have people tell me that she changed their lives. It's terribly dramatic, but they literally say that. I heard from a woman who became a pediatric nurse after reading the book. Hearing from people like that means more to me than anything."… (més)
Membre:iheartvegies
Títol:Alex: The Life of a Child
Autors:Frank Deford
Informació:Thomas Nelson (1997), Paperback, 228 pages
Col·leccions:La teva biblioteca
Valoració:
Etiquetes:Biography

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Alex: The Life of a Child de Frank Deford (1983)

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the life of a child
  jhawn | Jul 31, 2017 |
The author's daughter died at age 8 of cystic fibrosis in 1980. This version was re-released in 1997, with the author's forward noting that a cure is in sight. Unfortunately that hope was premature and there still is no cure for the disease. Although technology and knowledge has improved, I'm not sure given the severity of Alex's disease if she would have lived past her teens if she were born today. Hopefully someone will really figure out how to have children as severely ill as Alex be able to be cured. ( )
  nancynova | Jul 15, 2015 |
I got this book when I was a child myself - and even then, the story of Alex drew me; I wanted to be Alex Deford's friend. In later years, re-reading the memoir of the struggle and pain and heart-lifting moments the Defords struggled through, I recall thinking that this young girl was one of those children that lead you to wonder about wise old souls in childrens' bodies. Be prepared - if your heart is not made of stone, you may want to invest in Club Pack boxes of tissues or a set of hankies. I went through three copies of this book - in no small part because between rereading it myself and lending it to friends, the pages became warped and slightly blurry because several of them were spattered with tears. ( )
1 vota puckrobin | Jan 7, 2011 |
Outstanding, and one of my all time favorite books, even though I cannot get through it without bawling. ( )
1 vota joannemepham29 | Jun 13, 2010 |
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Dear Scarlet,
Now, when you are old enough to read this, you will know all about Alex...
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Alex barely lived eight years.
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Alexandra Deford, a precious and precocious girl, was just eight years old when she died in 1980 following a battle against the debilitating effects of cystic fibrosis, the number-one genetic killer of children. Her poignant and uplifting story touched the hearts of millions when it was first published and then made into a memorable television movie. A new introduction contains information on the latest cystic fibrosis research, and a touching postcript reveals how the Deford family came to terms with the loss of Alex. Whenever he speaks, sportswriter Frank Deford knows people will bring articles for him to sign. But what makes him happiest is when someone attends a sports-oriented lecture and brings a copy of Alex: The Life of a Child for him to sign. "Invariably, and happily, there's usually someone at each appearance who either brings that book or wants to talk about their connection to cystic fibrosis." Deford says. "It's tremendously gratifying to me. Rarely does a week go by that I don't get a letter about that book. People leave things at her grave. They really do. I have people tell me that she changed their lives. It's terribly dramatic, but they literally say that. I heard from a woman who became a pediatric nurse after reading the book. Hearing from people like that means more to me than anything."

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